All,

It's me mom, just checking in to tell everyone the cast came off yesterday! We drove to the city Tuesday after work for a 8am meeting with Doc Healey on Wed.   In our meeting yesterday we had a lengthy discussion regarding scans.  The topic came up as our previous bone scan that was done here locally is requiring some additional evaluation.  It seems that our local radiologist is not familiar with  reading a scan on a allograph (Ewing's as well) and had concerns with the way it reads.  Basically her leg lights up!  I've seen it myself and have always had faith that it's healing and thus shows more activity.  Doc Healey agreed with me but since a recommendation was made for further evaluation we have to follow up with an MRI.  This also took us into the topic of doing scans at all.  The protocol with her oncologist is every three months with a chest x-ray monthly.  I haven't been doing the monthly chest x-rays and now I don't want to do the scans every three months.  Doc Healey gave me his opinion and I respect him immensely, now I have to find a way to have this discussion/negotiation with her oncologist.  I want every six months.  We shall see........ 

As for Dallas' leg, she feels like the bone is missing in the leg that the cast came off of.  I think it's going to take a few days/weeks to gain the strength and confidence back as it was always her "good " leg.  She is still in some significant pain but handles it very well.  She is my hero!  Next follow up with Doc Healey is at the end of September. 

Hope everyone is enjoying their summer.  God bless all!

Much love,


Mom